Q. Who does the interviewing and how do you ensure sensitivity to Pacific peoples issues?
A. Field staff who are employed during the interview phases are fluent in English as well as a Pacific language. A South Auckland office provides a base for the interviewers, a secure collection point for completed interviews and a location for frequent team meetings and briefings ensure that problems are quickly and sensitively dealt with by the Pacific team.
Q. How are problems solved on a day-to-day basis?
A. All staff involved with the project are responsible to the Directors who have overall responsibility for the project. In addition a Management Group have responsibility for general decision-making and policy development to ensure optimum running of the study.
Q. Can the participants be interviewed in their native language?
A. The interviews are individually administered by interviewers who are fluent in a Pacific language and every effort is made to interview participants in their specific Pacific language if requested.
Q. Who provided ethical approval and consent?
A. Careful consideration was given to the ethical aspects of this longitudinal study with Pacific peoples.
Q. Ethical approval for the PIF:FTY study was obtained from the Auckland
A. Branch of the National Ethics Committee, the Royal New Zealand Plunket Society and the South Auckland Health Clinical Board. Ethical approval for the PIF:TTS Study was granted by the National Ethics Committee. The Ethical approval for this phase, PIF: TA was granted by Northern Y Regional Ethics Committee. Mothers provide individual verbal and written consent for their and their children's participation. For this phase, the child signs a letter of assent in addition to mother's consent. Both participants are free to withdraw at any time.
Q. Who keeps the data from the study?
A. The data from the study is coded and held anonymously in secure storage under the responsibility of the Co-Directors in accordance with the requirements of the New Zealand Privacy Act (1993) and the Health Information Privacy Code (1994). All reference to participants is by code number only. Identification information is stored on a separate file and computer from that containing the actual data. All interviews are confidential and only PIF Study staff authorised by the Co-Directors have access to computerised data. All information is treated as sensitive data. Provisions have been made for any participants who request that their data be disposed of at any time.
Where does the bulk of the research funding come from
The Foundation for Research, Science and Technology
The Health Research Council of New Zealand, Guidelines on Pacific Health Research